Our mission
We translate new epilepsy research into plain language for people with epilepsy, parents, and caregivers.
What we do
- Scan PubMed, NIH/NINDS, and other trusted sites for new research
- Score and summarize new studies to share on the site
- Flag high‑risk topics with clear caveats for safety
- Provide additional free downloadable and printable resources
Why we do it
Our son had his first seizure while we were on vacation. Soon after, he would be diagnosed with epilepsy. It was new territory for all of us. The most we knew about epilepsy was from the warnings before movies and video games. Part of how we tried to make sense of it was by reading up as much as we possibly could. But eventually, all roads led to cutting-edge research articles and white papers that we couldn’t understand. These papers are written for doctors and scientists, and we’re just normal people. It was deeply frustrating, because we wanted to know what was being researched today, but none of it made any sense. So we decided to create this website that will provide plain-language summaries of epilepsy research for regular folks. Our wish is that these summaries will be helpful, will raise awareness of this condition, and maybe give people a little bit of hope. 💜
Important caveat
Nothing here is medical advice. ALWAYS talk to your clinician about your situation.