Our mission
We translate new epilepsy research into plain language for people with epilepsy, parents, and caregivers.
Who is behind the site
Epilepsy Explained was founded by Ariel Gross, a parent whose son has epilepsy. Ariel is the site’s publisher and is responsible for its publishing process and corrections. The project grew from our family’s experience of trying to understand epilepsy research after our son’s diagnosis.
Our contribution is a family and caregiver perspective: making difficult research easier to follow, sharing useful resources, and helping readers prepare questions for their care team.
What we do
- Scan PubMed, NIH/NINDS, and other trusted sites for new research
- Score and summarize new studies to share on the site
- Flag high‑risk topics with clear caveats for safety
- Provide additional free downloadable and printable resources
Why we do it
Did you know over 50 million people in the world live with epilepsy? 💜
Our son had his first seizure while we were on vacation. Soon after, he would be diagnosed with epilepsy. It was new territory for all of us. The most we knew about epilepsy was from the warnings before movies and video games. Part of how we tried to make sense of it was by reading up as much as we possibly could. But eventually, all roads led to cutting-edge research articles and white papers that we couldn’t understand. These papers are written for doctors and scientists, and we’re just normal people. It was deeply frustrating, because we wanted to know what was being researched today, but none of it made any sense. So we decided to create this website that will provide plain-language summaries of epilepsy research for regular folks. Our wish is that these summaries will be helpful, will raise awareness of this condition, and maybe give people a little bit of hope. 💜
How we prepare our content
Our Editorial Standards explain how summaries are prepared, how we handle the limits of research, and how to suggest a correction.
Supporting the epilepsy community
Once Epilepsy Explained begins earning revenue, we will donate a portion of all revenue to epilepsy charities.
Important caveat
Nothing here is medical advice. ALWAYS talk to your clinician about your situation.