PARADISE-24 Questionnaire Needs More Validation and Translations

Source: Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology

Summary

Researchers studied the PARADISE-24 questionnaire, which is designed to assess how brain disorders affect daily life. They looked at various studies that used this tool, focusing on its translations, reliability, and how well it works for different brain disorders like epilepsy, multiple sclerosis, and Parkinson's disease. The review included twelve articles out of 919 that were initially identified, with two reviewers ensuring the quality of the studies.

The key findings showed that the PARADISE-24 questionnaire has strong internal consistency, meaning it produces reliable results when used. It also demonstrated good construct validity, which means it effectively measures what it is supposed to measure. However, the evidence for its reliability was considered moderate due to some concerns about the quality of the studies. Notably, only one translated version of the questionnaire was found, indicating a need for more translations.

This research is important because it highlights a tool that can help understand the daily challenges faced by people with brain disorders. However, the limitations include the need for more studies to fully validate the questionnaire and the lack of translations into other languages, which could help more people benefit from it. Overall, while the PARADISE-24 shows promise, further work is needed to enhance its use and accessibility.

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