Status Epilepticus

This hub covers status epilepticus, a seizure emergency, which is when a seizure doesn’t stop or seizures happen back-to-back without recovery. The 5-minute rule, rescue meds, and what care looks like.

What you’ll find in this topic:

  • Plain-language summaries of new epilepsy studies
  • What the research means for real life
  • Practical questions to ask your neurologist
  • Related topics you can explore next

Status Epilepticus: What Families Usually Want to Know

  • What it is (and why it’s an emergency)
  • The β€œ5 minute rule” for convulsive seizures
  • Rescue meds: what they are and when to use them
  • What happens in the ER/hospital

Common Status Epilepticus Terms in Plain English

  • Status epilepticus: A seizure that won’t stop or repeated seizures without recovery
  • Convulsive status: Ongoing shaking seizure activity
  • Nonconvulsive status: Ongoing seizure activity without obvious shaking (often needs EEG)
  • Rescue medication: Fast-acting meds (nasal/buccal/rectal) used at home or school
  • Cluster: Multiple seizures close together (may trigger rescue plan)

Safety & First Aid FAQ

Is every long seizure status epilepticus?

A convulsive seizure approaching 5 minutes is treated seriously because the chance it won’t stop rises.

What should I do first at home?

If a convulsive seizure lasts ~5 minutes, breathing is abnormal, injury occurs, it’s a first seizure, or recovery is not typical.

Can someone be in status without shaking?

Yes. Confusion, staring, or unusual behavior that doesn’t resolve can be nonconvulsive status, especially in hospital settings.

Will my child/adult always need an ambulance?

Not always. Some families have plans that include rescue meds and monitoring. But prolonged convulsive seizures generally need urgent care.