This hub covers SUDEP risk: What SUDEP is, major risk factors, and practical ways to reduce risk without panic. Plain-language research summaries for families.
Most epilepsy organizations encourage clinicians to discuss it in an appropriate, supportive way so families can take practical steps.
Better seizure control, especially reducing generalized tonic-clonic seizures, and consistent medication use.
We don’t have proof it prevents SUDEP, but detection can help with timely response and safety planning.
It’s uncommon overall, but the risk is higher in people with uncontrolled seizures, especially nighttime convulsive seizures.
Researchers studied sleep patterns in people with Lennox-Gastaut syndrome (LGS), a severe form of epilepsy that affects development and causes multiple types of seizures.
A study was conducted to look at how effective Vagus Nerve Stimulation (VNS) is for children with drug-resistant epilepsy (DRE), which means their seizures do not respond well to medication.
Researchers studied the connection between heart and breathing patterns during seizures in people with epilepsy, focusing on those who experienced sudden unexpected death in epilepsy (SUDEP) compared to those who did not.
Researchers studied the challenges and effectiveness of epilepsy surgery in children with drug-resistant epilepsy (DRE), which affects about 30% of young patients.
This study looked at how epilepsy professionals in Spain talk about Sudden Unexpected Death in Epilepsy (SUDEP), which is a serious risk for people with epilepsy.
This study looked at a specific genetic cause of focal epilepsy called DEPDC5 variants, which are often linked to brain abnormalities.
A study was conducted in Jordan to understand how well pediatricians and pediatric residents know about epilepsy and its management.
This study looked at sudden unexpected death in epilepsy (SUDEP), which is a major cause of death related to epilepsy.
This study looked at how neurologists in five European countries—UK, Norway, Sweden, Spain, and Hungary—communicate about Sudden Unexpected Death in Epilepsy (SUDEP), which is a major cause of death for people with epilepsy.