Better Epilepsy Care For Adults With Developmental Disabilities
This paper is a seminar-style review about epilepsy care in adults with intellectual developmental disorders (IDD).
Pediatrics
This hub covers pediatric epilepsy in infants, kids, and teens, including diagnosis, syndromes, development, school plans, and safety. New studies translated into clear takeaways for parents.
What you’ll find in this topic:
- Plain-language summaries of new epilepsy studies
- What the research means for real life
- Practical questions to ask your neurologist
- Related topics you can explore next
Pediatrics: What Families Usually Want to Know
- What’s different about epilepsy in infants, kids, and teens
- Common causes, including genetic syndromes and brain development issues
- When to push for a specialty epilepsy center
- School plans, sports, and day-to-day safety
Common Pediatric Epilepsy Terms in Plain English
- Syndrome: A recognizable pattern of seizures + EEG + symptoms
- Developmental delay: Slower skill development (can have many causes)
- Regression: Losing previously gained skills (flag for urgent evaluation)
- Febrile seizure: Seizure with fever (often benign, sometimes relevant)
- Epileptic encephalopathy: Seizures/EEG patterns that can affect development
Related Topics
Pediatric Epilepsy FAQ
When is epilepsy “drug-resistant?”
Usually when two appropriate medications haven’t controlled seizures.
Should we get a 504 plan or an IEP?
Many families benefit and it depends on seizure frequency, medications, and learning needs.
Can kids with epilepsy play sports?
Often yes, with smart precautions. Ask your neurologist or epileptologist about your child’s specific risks.
What symptoms mean “call now?”
Clusters, prolonged seizures, breathing trouble, new weakness, or major regression.
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Sleep Problems Are Common In KCNB1-Related Disorders
This study looked at sleep problems in people with KCNB1-related disorders, a genetic condition that can involve epilepsy, developmental difficulties, or both.
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Genetic Testing Found Causes In Many Children With Epilepsy
This study looked at whole-exome sequencing in 1,109 children with epilepsy at a single medical center.
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Epilepsy Research Summaries | Genetics | Ketogenic Diet | New Studies | Pediatrics | Status Epilepticus
LGI1 Gene Change Linked To Severe Infant Epilepsy
This report describes one infant girl with very severe epilepsy and developmental problems.
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Comorbidities | Devices & Neuromodulation | Epilepsy Research Summaries | New Studies | Pediatrics | Safety & First Aid
Antipsychotic Use Was Low Among Ugandan Children With Epilepsy
This study looked at how often antipsychotic medicines were prescribed to children and teens with epilepsy in Uganda, and which medicines were used together.
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Frailty May Raise The Risk Of Epilepsy
This study looked at whether physical frailty was associated with a higher chance of developing epilepsy later on.
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Epilepsy Surgery Often Helps Seizures In Children With Sturge-Weber
This study looked at children with Sturge-Weber syndrome (SWS) who had epilepsy surgery at Great Ormond Street Hospital between 1993 and 2022.
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Drug-Resistant Epilepsy | Epilepsy Research Summaries | Imaging & EEG | New Studies | Pediatrics | Safety & First Aid
Brain Surgery In Babies Can Reduce Seizures
This study looked at hemispheric surgery in infants with early drug-resistant epilepsy caused by hemimegalencephaly (HME) or hemispheric cortical dysplasia (HCD).
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Many Children With Epilepsy Have Other Conditions
This study looked at how common neurodevelopmental, psychiatric, and sleep conditions were, alone and in combination, among children with “active” epilepsy.
